International Standards for Pediatric Palliative Care: From IMPaCCT to GO-PPaCS

Journal

JOURNAL OF PAIN AND SYMPTOM MANAGEMENT

Author(s)

Franca Benini

Danai Pappadatou

Mercedes Bernadá

Finella Craig

Julia Downing

Ross Drake

Stefan Freidrichsdorf

Daniel Garros

Luca Giacomelli

Ana Lacerda

Pierina Lazzarin

Sara Marceglia

Joan Marston

Mary Ann Muckaden

Simonetta Papa

Elvira Parravicini

Federico Pellegatta

Joanne Wolfe

DOI

10.1016/j.jpainsymman.2021.12.031

Project(s)

Translation, adaptation for teenagers and validation of the Long-Term Conditions Questionnaire (LTCQ), and its application in a real life setting of adolescents with gastro-intestinal chronic disease